Wednesday, May 4, 2011

Hello, again.  Today marks eight weeks of life for Seton.  It has been the roller coaster of a lifetime which words can’t accurately describe.  We have experienced the array from devastation to God-designed miracle.  From tears of utter despair and misery to moments of unmerited bliss and heaven, we’ve walked it.  Do we wish things were different sometimes?  Yes.  Is God’s plan and power still in full control?  Yes.

Seton continues to grow and improve each week, and there are no major updates to speak of right now.  His tube did clog again this week, but at least we got a solid 10 days from this one.  We’re now pursuing an aggressive flushing schedule to keep that thing clear!

The speech therapist came for her first therapy session this morning and was at a loss for what she could do to help him improve on his swallowing. He was already swallowing all by himself this morning, so she sat and watched him move his head and swallow his saliva when he needed. He has also begun to take his pacifier for a few minutes at a time, which will only improve his ability to feed when we are able to do the swallow study. 

I committed a major blunder last week and forgot to let you all be a part of Seton’s first Easter.  He got to make his first trip to Coco and Papa’s house to enjoy family time.  So here are a few pictures from his inaugural Easter and maiden voyage out of the house (non-hospital related).  It was a complete coincedence that we found nearly-identical shirts :)






Zane

"A righteous man may have many troubles, but the Lord delivers him from them all"  Proverbs 34:19

4 comments:

  1. You and your family are truly a blessing and inspiration to all who know you. God bless all of you on the journey.

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  2. Zane,
    I'm so glad to see that Seton is growing and getting stronger daily. You guys continue to be in my prayers. Love the Easter pictures - too cute!!

    Brittany

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  3. Agghhh! Love the matching shirts! You guys continue to bless us. We love you guys!

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  4. Yea for little Seton getting bigger and stronger! The Easter pictures are so gorgeous and Shawna you look great! What a huge inspiration your little family is to us all. We love you guys.

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