Seton is now 14 weeks old. As for an update…not much has changed. Seton started wearing Size 1 diapers this week. His current feeding tube has been in for 13 days and we are hoping to break the current record of 21 days.
We had an appointment with Dr. Habersang today. Seton now weighs 8lbs 13oz. and is 22.5in long. Seton is doing really well with swallowing, so Dr. Habersang’s office is going to schedule a swallow study within the next 30 days.
We have been working on a sleep schedule for Seton. This is a challenge! It has been a struggle for all of us not to hold him all night. We hope by getting him to sleep for longer periods of time in his bed so we won’t need as much help from our family, who graciously comes over night after night to watch our sweet boy – allowing us to get some rest. Our nurses are helping us out also by allowing Seton to get mad at them when they keep him up throughout the day.
Heather Ladd (http://heatherladdphotography.com) came over this week to take 3 month pictures of Seton. Heather truly is an amazing photographer, and we are very excited to see the outcome. We will definitely share them with all of you. Heather also took our maternity pictures that we posted earlier. She did a wonderful job with those, and I know Seton’s pictures will be great also.
Seton’s hands are starting to open up a little bit, and he seems to have a little bit more control of his fingers. He will have his first visit from an Occupational Therapist next week to start working on his hands and fine motor skills. He continues to see his Speech Therapist every week and is making progress in that department also. We take each small step in healing as it comes and believe for a miracle.
Thank you all for your support and prayers. It means so much to be surrounded by so many wonderful people that are willing to help.
I have set the LORD always before me. Because he is at my right hand, I will not be shaken. Psalm 16:8