Yesterday was one of the hardest days of my life. We got to Dallas
His knowledge, genuine concern and compassion, and his helpfulness were greater than anything we could expect. He spent about an hour with us doing the sonogram and discussing different things he was seeing and not seeing. His overall message to us was not much different from what we have heard several times at this point – the baby’s brain is severely small and does not appear to be growing. He suggested that we do an amniocentesis so they might get a better idea of what is going on genetically. He felt this would give us the best information to make decisions for the safety of the baby and the safety of Shawna.
He and his staff immediately set us up with an appointment at Children’s for a fetal MRI. It was 4:30 when we left Dr. Magee’s office, so we got the adventure of making it across downtown right at the beginning of peak traffic. It took us a bit, but we made it without issue. Dr. Rollins (neuro-radiologist specialist) was gracious to stay late and fit us in. After Shawna and I spent 30 minutes sealed in the room with ear plugs, the MRI was complete and Dr. Rollins brought us back to review what she’d read so far from the test. She again confirmed what everyone else has told us so far.
At this point, it’s about 6 pm, and we received instruction to have Dr. Eapen (pediatric cardiologist in Dr. Magee’s group) paged so she can meet us back at their office for her portion of the evaluation. After another stint in traffic, we made it back. Dr. Eapen, again going far beyond what we expected, took time away from her family on a Friday evening to be with us and help us. She gave us the best news of the day. Overall, the baby’s heart looks really good. Form and function are as they should be. Last week, there was thought to be a problem with blood flow, so this is the direction we’ve been praying to see.
We left her office about 8:30 pm and grabbed a quick bite to eat before getting on the road to come home. Home is where we wanted to be. Shawna’s parents were with us and got us home safely at 4:30 am. So here we are. What now and what next?
Our hearts are drowning in devastation – to hear professional after professional tell you there’s little chance your son will live – but through our tears we are still asking and believing for a miracle. Asking that our son will be made whole and standing on Isaiah 53:5 – “by his stripes we are healed.” So please don’t find ignorance or arrogance as we press forward with our plans, baby showers, etc. as we celebrate life.
Thank you for standing with us. The outpouring of prayers, love, and support is beyond tremendous.
Zane
Praying, praying, praying... we pray about you, we think about you, then we pray some more. God has a plan and He chose you to be parents to this sweet baby boy, just as He chose me to be this baby's aunt and cousins to my kids. We love you and we are so amazed by your courage, strength and faith. Continually praying for you and your baby boy...Tiffani
ReplyDeleteI just ran across this as you mom had posted it. We will be think if you as this journey continues. Much love and prayers.
ReplyDeleteI am thinking about you three and your whole family. What is your baby's name? My dad works for your dad - Robert.
ReplyDeleteI had no pre-labor warning that my baby boy had problems so I have no idea how you are feeling right now, but if you need to talk to anyone I am always available. My baby boy died in labor last August. Please attend counseling and research everything now so you can handle whatever you will face in the future - be it a healthy little boy with slight special needs to an angel in heaven.
Cherish everyday with him and every kick it will help you go through the days in the NICU or other outcomes.
Hi Zane and Shawna, I am so thankful to have come across your blog listed on fb. I'm not sure if ya'll are aware of our little Tessa, (born last April) and her diagnosis we learned about in August, but I just wanted you to know that my heart goes out to you and the devastation you feel and the hardships ahead. There are days my husband and I make it through by the simple comments of support and encouragement left on our blog. I want to try and do the same for you. I will be committed to praying for the two of you and your precious baby boy. I am committed to follow your blog and will be specifically prayerful as ya'll press on! My heart is heavy for you and I will be praying for the peace that God has granted us time and time again. Much Love,
ReplyDeleteWhitney Bynum
we just love all of you guys. we are committed to standing beside you and praying for you and sweet baby boy oliver! thanks for keeping us updated and sharing your life with us. much love from the wades
ReplyDeleteOur hearts ache for you guys and wish that we could take your pain and anguish away.
ReplyDeleteI believe that God knits every child together in the womb, just like Psalms 139:13-14 says,
“For You created my inmost being; You knit me together in my mother’s womb. I praise You because I am fearfully and wonderfully made. Your works are wonderful, I know that full well.”
This amazing miracle from God may be small in many ways but his story is big, touching people's lives in ways you could never imagine. We and our church here in Baton Rouge are praying for a miracle for your little boy and we are holding you up in prayer. We love you and Shawna so much!
Shawna, I am constantly praying for God's peace and comfort to work in your life during this difficult time. May heart is aching for you right now. I pray that you guys are able to find the comfort that you need and I am praying for God to work miracles in your little man's life.
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