I’ve dropped the ball again on our updates. It isn’t unimportant to us, because we’re so glad to have you all involved and supporting us. It’s just a matter of time and energy. The blog is always on the list, but most days the list doesn’t get completed. So there’s my ongoing apology.
Seton’s swallow study did not go as we hoped. He was given glucose water with some barium in it, and delivery was attempted with several different types of nipples without success. He just wasn’t very interested in “nursing” at that time. They tried injecting some of the solution directly in his mouth, but he mainly played with it with his tongue and swallowed almost none of it.
That led us to Seton’s appointment with Dr. Habersang last Friday. Seton has been having lots of irritation, and therefore lots of blood, associated with his tube recently. If nothing else, it’s been challenging to watch. The general consensus is that we have gone about as far as we’re able to with the NG feeding tube. Dr. Habersang feels like Seton’s growth, progression, and size now merit the G-tube surgery. Although it bears a considerable amount of risk with all factors, upon recovery it should improve his overall quality of life and make things simpler on everyone. 99% of our hospital/ER visits should be eliminated, and he will become much more mobile. We hope the new ability for increased social interaction will aid in his development.
The surgery is a pretty big deal for us, and we are fairly apprehensive about it. It will require us to be in the hospital for at least a week, and will also entail a 6+ week period of healing and recuperation afterward. We’d really appreciate all of your thoughts and prayers toward a safe and successful surgery, as well as a quick and complete recovery. I promise I will do a better job of updating with important details…the first being the surgery date, as soon as it’s scheduled.
Zane
Praying that all goes well with the surgery!
ReplyDeleteWe keep you all in our prayers constantly. I will keep checking for back for the surgery date and know that I will be on my knees at that exact time lifting you all and the doctors and nurses in my prayers. Yall are fighters for your sweet boy and so strong! What an example and inspiration!
ReplyDeleteDear Shane and Shawna,
ReplyDeleteWe continue to hold all of you up in prayer. My grandson has had a g-tube since he was tiny, and he will be 5 tomorrow. He is nearly finished with it. I am sure his mother, a medical social worker at Denver Children's Hospital, or his dad, an ER nurse at Denver Children's, would gladly talk with you about the process. Jim is a great go-to person and knows volumes about that kind of thing. He actually puts them in at times. Your mom has my e-mail and phone number if you wish to contact Jim or Alisa. They would be more than please to speak with you. Take care. Cousin Diane Duty